The Skin Cancer Advisory Committee was born when Standing Voice asked myself, along with Dr. Wheeler in Ireland, Dr. Mavura in Tanzania and Dr. Levin in New York to form a committee of relevant medical experts to further the development of their work with people with albinism.

The role of the Skin Cancer Advisory Committee is to act as a knowledge base for Standing Voice and to help support the programme’s aims. We also advise on medical issues relating to individual patients, as well as the best ways to prevent and treat skin cancer, and contribute to the future development of the programme through collaborative strategy and research. My role as Chair of the committee involves leading the group and focusing its efforts where they’re needed most. Albinism is significantly under-researched, especially in Africa, and so we look for opportunities to conduct groundbreaking research to advance knowledge on albinism with the purpose of improving the standard of, and access to, critical healthcare.

Our Manual of Best Practice, launched earlier this year, is the product of collaborative efforts between Standing Voice and the Skin Cancer Advisory Committee. I'm pleased to have been the editor of this resource, responsible for pulling it all together into the comprehensive guide, a first of its kind, that is now distributed to healthcare professionals as well as healthcare organisations across the region. The launch of the manual at the World Congress of Dermatology in Milan, among 20,000 delegates, the President of the International League of Dermatological Societies and board members of the International Foundation of Dermatology, is certainly a personal highlight.

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March 8th, 2022

In conversation with Standing Voice

The Singers

- Neema -

Speaking Out

2021 so far

March 8^th, 2022